Weeks Two and Three

We are in the fifth full week of summer and about to start Camp LuthinLighter and swimming lessons.  Sheesh.  So much has gone on around here and I want to remember it all.

The second full week of summer found Little and Bubba attending Variety Adventure Camp.  Variety is a children’s charity that provides equipment for children with special needs – for example, shoe inserts for our Little.  Each camper has their own counselor and there is swimming, ice skating, karate, cooking, and more.  I am so thankful for these special kids to get a camp experience and this year there was the added bonus of Bubba’s counselor being a graduate of KDS (the school Bubba will be attending this Fall).  I was concerned about how Bubba would handle the news that he was switching schools, but one week of “Corey had Mrs. Hickle” and I knew all would be well.  (KB and I had many adventures together during the week AND a couple “play dates”!!)

Week Three allowed for competitive app playing with Bubba at home while Little and KB attended camps.  Little attended dance camp at a nearby Christian high school.  Her teacher from Promise is the coach of the dance team and they invited the girls from Promise to be a part of the camp.  Little had a ball and did supprisingly well for a gal who “can’t” coordinate the right and left sides of her body!!

KB attended a camp through the Center for Creative Arts (COCA) called “More Than A Box”.  She must have had a great time because she came home covered in paint each day.  Here’s the description of the camp: “Age: 4 – 5.  Boats…cities…castles…spaceships!  There is nothing you can’t make from a giant cardboard box, a lot of cool art materials and your imagination. Discover the possibilities in this really imaginative visual arts camp.”  Doesn’t that sound super fun? She says it was!

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“Blessed are those who mourn, for they shall be comforted”

I was asked a couple weeks ago if I would talk to our youth group in Sunday School today.  The friend who asked told me that they were studying the beatitudes and when they were discussing who could share about “Blessed are those who mourn”, well she thought of me.  I wasn’t sure just how to take that.  Should I sit down to enjoy my own personal pity party?

Thankfully the youth minister, Michael, got me a copy of Hero of Heroes, by Ian Duguid, AND thankfully I read it.  In the first paragraph the author’s words redirected my thoughts.  He wrote that the mourning in the Beatitudes is not about personal sadness over circumstances but deep sorrow over sin.  I was convicted.  It made me think.  This is what I thought . . .

Most of you know that I grew up in Birmingham, AL as a preacher’s daughter.  I trusted Jesus as my Savior when I was very young and have bowed my knee to His Lordship time and time again as life has gone on – prayerfully with a quicker response time as I have grown.  I worked for a college ministry after college, lived in Australia for a couple years, and then returned to the USA to marry my sweet Honey.  I had a relatively easy life, loved this world and ministering to “those people” and, honestly, I thought I was a great example of what a Christian should be.

In 2004 we had our first child, Little.  When she was four months old I started thinking that something wasn’t right. . . she was too mushy and she never reached for her toes.  I made a couple jokes here and there but never voiced true concern because that might make it true, you know? At 6 months my mom and sister staged what I would call an intervention and voiced concern for a visit to a doctor.  Just before Little’s first birthday we were told that she has Agenesis of the Corpus Callosum – she’s missing the 200 million nerve fibers that connect the right and left hemisphere of the brain.  I was already pregnant with Bubba and sat in the Neurologist’s office hearing that we couldn’t be sure that Little would walk or talk or be able to learn anything in school.  And then the doctor said that there was a 1/4 chance that this would happen again if we had any other children.  He would love to talk to us about “our options” and if we found ourselves pregnant then he would be glad to discuss those options too.  SO MUCH is wrong with all of that, right?

Over the past 8 years we have mourned.  While it started out to be a pitiful self-centered mourning, with time it became something I would never have expected.  I became struck by just how broken this world is and how that brokenness affects my little girl and our family as a unit.  She doesn’t have a disability because she sinned but it is because of sin and the fall that she isn’t whole.  The world was never meant to be this way and I have a new appreciation for this disconnect in creation.

As I have become more aware of the effects of sin universally, it has caused me to take stock of my own life and I’ve grown more aware of my own sinfulness.  In just one short decade I have gone from thinking pretty highly of myself to thinking very honestly about my need for a Savior and inability to live without Him.  I often spend my days oscillating between disgust and gratitude; depressive grief and hopeful joy.

Duguid writes, “We must mourn but not as those who have no hope.”  One day our Little will walk with the Savior and she will be whole.  Her arms will straighten all the way and she will be able to sing and dance at the same time because her brain will work the way God intended.  And she’ll be singing and dancing in praise to Him.  What hope! What comfort!

The lyrics of Andrew Osenga’s song “White Dove” say, “Everything sad will become untrue.”  That is my hope.

Now, what I am about to say might sound trite to some, but I really weighed these words before deciding to write them.  With all the pain that has come with Little’s diagnosis and the daily struggles that we face, I have to admit that I wouldn’t change things because of where He has brought us.  I am blessed in my mourning in a way I wasn’t during the first three decades of life and I find comfort by the promise of being made new.  Hallelujah and come quickly, Lord Jesus.

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Do You Remember May 21, 2012?

Yes, I realize it was over a month ago that my son graduated from Kindergarten and I am just now getting to post about it.  Hey, life at the Blue Hutch is a moving train and we are all holding on for dear life; give me a break!

On May 21, 2012 KB and I were two of the first to arrive at the elementary school and we found this at the entrance to the gym:I was instantly aware that this was not going to resemble Little’s graduation AT ALL!!! We sat on the floor in her classroom while the kids quoted a poem.  No, this was going to be      a real production.

There are three Kindy classes and they filled the risers before singing eight songs for us.

Our little man was in blue and did a fabulous job with words and motions and

playing a little Glockenspiel during one number.  Can you see him between that man’s head and other man’s shoulder? He did SUPER.

The final song of the afternoon was   “Love in Any Language” and I literally had flashbacks to college and Michelle McEwan Sanborn singing Sandi Patti on beach project. Bubba was just shocked I knew the words and I gained a few cool points. Sheesh.

After the festivities in the gym there was cake and fun in the classroom.  Bubba’s teacher has been gone for eight weeks after giving birth to her second little boy in March.  She came back to celebrate with the class and I overheard my little man say, “Mrs. Nienhaus, I have missed you.  It’s good to see you.”  SO SWEET.

The permanent substitute did a super job and really jumped to it when the change in teacher did a number on our anxiety ridden little man.  We are thankful for her commitment to our guy and the GREAT communication she provided during these weeks.  Cheers, Miss Cox!!

It was a wonderful year and Bubba made some really good friends.  This mamma could not be more thankful for MRE and the great time our kids have had there.   AND I couldn’t be more proud of our little man . . . a first grader!!

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